What's your story?

Tell us about any aspect of diabetes treatment, your experience and thoughts. Whether you want to tell us about your local services, give us your perspective as staff, relative or policy maker, talk about how you manage your diabetes, or what treatment works best for you, let us know.

Age related management

posted 08/12/2004 - 16:12 by moxeyns
In many ways, I can see the sense of the advice I've been given to manage my diabetes as being all that's necessary for an elderly patient, who may have compliance issues or simply not need to exercise strict control given their likely lifespan. On the other hand, I'm in my early 40s and newly diagnosed as Type 2 - I have perhaps another 40 years to live with this disease, and the advice I have been given is wildly inappropriate for anyone willing to work at blood glucose & lipid control.

An example - on diagnosis, I was told to lose weight by following a low-fat, high carbohydrate diet. I ate a bowl of high fibre cereal, and my BG levels went from 8 to 29 mmol/l. A slice of bread doubled my reading. Anything above the mid-7s is hurting your eyes and your kidneys; long-term levels that high are increasing risk of heart attack and stroke.

I want to be able to maintain blood glucose levels as near as possible to non-diabetic ones, to minimise the risk of complications. The UKPDS study, the definitive UK study on diabetes, proved that, for every percentage point over normal for the HbA1c reading, the risk of both micro and macro complications increases; and yet I am unable to get a prescription for blood test strips, because my PCT finds giving diabetes drugs out the cheaper option.

So far, my experience of diabetes has been positive - I really like the new, slimmer, fitter me - but my experience of the health profession has been stressful beyond belief. I am trying not to be the blind dialysis patient in a wheelchair because of the neuropathy - but my PCT is actively hindering that aim.

Erectile dysfunction

posted 08/12/2004 - 17:14 by phoenixpr
Since contracting diabetes I can raise an interest but not the means to have sexual intercourse. I have tried many times with a Viagra tablet but they just give me a slight tingle accompanied by a headache. There are two other tablets possible, Levitra and Cialis, and I'll be trying the latter soon. Watch this spice.

Erectile Dysfunction

posted 25/01/2005 - 18:38 by ex120sqn
Yes, I can understand the link between diabetes and ED. But be careful with the type of medication you tried. Heart disease is a common complication of poorly managed diabetes. I'm 60 and a cardiologist with Type-2 since 1996. I've had 3 heart attacks so far and Viagra/Cialis would be far too unsafe for me. I've just had to accept it and be thankful for the memories. If you can maintain GOOD blood sugar control and are not on either an Alpha-Blocker (for high PSA), or a Beta-Blocker (to lower blood pressure) and don't smoke then you stand a good chance of normal erections.

Age related Management

posted 16/12/2004 - 13:15 by Calcutta
I fully empathise with your frustration. It raises real questions about the qualifications of the person giving you your diagnosis. On diagnosis of any disease or problem etc. for anything, let alone diabetes, you need to be talked through and agree to a Careplan for you and you alone! Included in that should be what to do with your diet, how to manage itetc. to suit you and best HbA1 levels. A good Dietician would surely benefit you? Our team at the local Diabetic Day Care Centre is very good - if over stretched as are most. As to not providing blood testing on prescription - again we have local training sessions to help all different types of diabetic management.

Standard Dietary Advice Is Flawed

posted 26/01/2005 - 12:07 by Katharine Morrison
As you have noticed eating highly refined carbohydrates such as breakfast cereals and bread cause big spikes for most diabetics both type ones, twos and those with "glucose intolerance". Potatoes, rice and white flour products and of course sugar also have the same effect. Vegetables that grow above the ground however have a lot less starch in them and a fibrous structure that allows a more gentle release of the sugars they contain. Eating very small portions of high sugar releasing (glycaemic) foods and combining them in a meal with adequate protein and fat can also reduce spiking.

Every time your blood sugar goes above 7.8 you irreversibly kill off some of your pancreatic beta cells and nerve cells. There is evidence that beta cells are killed off at blood levels even lower than 7.8 the lowest level I have read is 6.1. This is why people with glucose intolerance also are at risk of the same complications as diabetics. If people with this condition persist in eating high carb meals they will progress more rapidly into type two diabetes because the pancreatic beta cells perish. For those with type two diabetes high carb/glycaemic diets will also cause beta cells to diminish and insulin injections will be needed more rapidly than would be the case with a low carb diet. For newly diagnosed type one diabetics the reduced rise in post meal spikes with a low carb diet will help to prolong the "honeymoon phase" but sadly due to the progression of the underlying autoimmune disorder this can only delay rather than prevent complete death of the insulin producing pancreatic beta cells.

Low carbohydrate,moderate protein and high fat diets have been proven to reduce blood sugar spikes and to give a more even distribution of blood sugars for a lot longer after meals than the low fat high carb diets advocate by Diabetes UK and most probably your local NHS dietitian. In addition the lipid profile of most patients improves on this diet. For the small number of patient who have raised LDLs on a low carb diet they usually benefit from either reducing saturated fats considerably and reducing high arachidonic acid items such as red meat and egg yolks or if they prefer they could take a "statin" which is a drug often prescribed for diabetics as a preventative measure.

Although the American Diabetes Associatiion has recently produced a low carb diet cookbook for diabetics and a carb counting guide the NHS is still way behind on this.

Fortunately there are a lot of internet resources that can help you. I would suggest you start with "Rick Mendoza". It is a pity that we cannot get the same service from our local dietitians.

Low carboydrate and normalising blood glucose in diabetes

posted 27/01/2005 - 01:18 by ronraab
I believe the current dietary advice for diabetes is wrong, not supported by the evidence, and does enormous damage. For more information see:

Power Point Presentation on the Department of Epidemiology, Graduate School of Public Health, University of Pittsburgh site:

LOW CARBOHYDRATE, LOW INSULIN, MODERATE PROTEIN, HEALTHY FATS AS THE BASIS FOR BLOOD GLUCOSE NORMALIZATION IN DIABETES

http://www.pitt.edu/~super1/lecture/lec17721/index.htm

Test Strips

posted 08/12/2004 - 18:37 by ErnieHastings
I am told by my GP and also by the hospital Diabetes Clinic nurse that I should not test by any other means than Urine strips.

However, all the research I do points to the fact that to maintain the best control of all my levels to ensure the best long term outlook I need to test with a Blood Glucose monitor.

I am convinced the only reason my Dr. will not prescribe the test strips is financial and not medical.

Blood sugar level testing

posted 09/12/2004 - 10:53 by phoenixpr
I was issued a meter by my hospital, St Mary's in Paddington, some years ago. You can test as often or as infrequently as you like - it is not invasive just a small prick which brings me on to another subject.....
Best reading after no food or drink for two hours. Mine varies between 8 and 10. US measures things differently which is confusing when looking at American websites. There is a test carried out by doctors which establishes long term blood sugar level. Mine is 6.

In UK we measure blood readin

posted 10/12/2004 - 13:20 by mwalpole
In UK we measure blood readings in mmol while in USA they meausre in mg/dl. As a rule of thumb to convert the USA readings to mmol you would divide the mg/dl by 18.

The test carried out by the doctors I believe measures blood sugar levels in your blood over a three month period and is called an Hba1c test. This should ideally be conducted every three months.

test strips

posted 09/12/2004 - 14:39 by deball
Glucose only gets into your urine as an escape route - when it is too high.

PCTs were told a few months ago that they MUST NOT limit the number of test strips prescribed if required by a patient.

Urine testing only tells you when your BG is over [I recall] 10 mmol which I have always been told is too high for most people.

Perhaps, this is just ignorance?